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9/3/2021

Truth and Reconcilation Activity from START/UNH

Are you a young adult with a developmental disability and mental health condition (IDD- MH)? Are you a family member of a young adult with IDD-MH? Would you like to learn more about how people with IDD-MH, their families, and researchers learn can do research together? Researchers at START/UNH, the University of Florida, and Georgetown University are inviting you to attend a "Truth and Reconciliation" activity. Reconciliation means to make things better.

 
 

9/2/2021

Connectivity Kits at Texas Center for Disability Studies

The Texas Technology Access Program, within the Texas Center for Disability Studies at the University of Texas at Austin collaborated with the local Aging and Disability Resource Center (Capital Area Council of Governments) to assemble connectivity kits for persons with disabilities, older adults, and their caregivers. The intent is to reduce isolation while connecting people to their community and to telemedicine.

 
 

9/2/2021

Dr. Emily Graybill becomes new Director of Georgia UCEDD, Center for Leadership in Disability

Emily Graybill, PhD, has been a faculty member at the Center for Leadership in Disability (CLD) at Georgia State University (GSU) since 2011. During that time, she has led impactful work that has strengthened Georgia's systems of care for children, adults, and families living with disabilities. Dr. Graybill transitioned into the role of Director on June 1st of this year following the retirement of CLD's founding Director.

 
 

9/2/2021

Dr. Jennifer Walton elected to the Executive Committee of the Section on Developmental Behavioral Pediatrics of the American Academy of Pediatrics

Jennifer Walton, MD, MPH from the Ohio State University Nisonger Center was elected to the Executive Committee of the Section on Developmental Behavioral Pediatrics of the American Academy of Pediatrics. Term to begin November 1st.

 
 

9/2/2021

Institute for Disability Research, Policy & Practice Salutes New Division Director

Dr. Tim Riesen is the new director of the Research and Training division of the Institute for Disability Research, Policy & Practice. To him, the research and training are connected: conduct the research, strengthen the training.

 
 

9/2/2021

Meet Members of Georgetown University Center for Excellence in Developmental Disabilities Advisory Council

The Georgetown University Center for Excellence in Developmental Disabilities (GUCEDD) is highlighting members of its Advisory Council (GAC) through a series of videos. The three newest members to participate are Wilma Elen, a parent of a person with an intellectual/developmental disability (IDD); Rebecca Salon an advisor to Project ACTION! and a representative from the State Office on Policy, Planning, and Innovation for the District of Columbia's Department on Disability Services; and Robert Kennedy, a member of Project ACTION!, an advocate, and a person with the lived experience of developmental disability.

 
 
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9/2/2021

MI-DDI and FEMA Flood Disaster Speakers Panel

Michigan Developmental Disabilities Institute (MI-DDI) joined the Federal Emergency Management Agency (FEMA) to host a webinar featuring several speakers from FEMA on August 25, 2021. The session focused on resources and aid available to Michiganders affected by the severe storms and floods of June 2021. The webinar and links to resources and information can be accessed on MI-DDI's video resources page.

 
 

9/2/2021

The Ohio State University Nisonger Center Next Chapter Book Club Updates

Each of the 11 Next Chapter Book Clubs in central Ohio, which had been meeting virtually for the past year, voted in July to either return to in-person meetings, remain virtual, or create a hybrid schedule. Seven clubs eagerly chose to begin meeting in-person again, and members and facilitators in these clubs have been greatly enjoying the chance to be together.

 
 

9/2/2021

Vanderbilt Kennedy Center UCEDD Co-director Aims to Expand Inclusive Higher Education in the U.S. Through Accreditation Committee Work

Vanderbilt Kennedy Center (TN IDDRC, UEDD, LEND) UCEDD co-director Elise McMillan, J.D., recently served on a national workgroup of experts to develop model program accreditation standards for inclusive higher education (IHE) programs for students with intellectual disabilities. The 2021 Think College! National Coordinating Center Accreditation Workgroup wrapped up its work with the recent release of its latest five-year report.

 
 

9/1/2021

New Hawk-IDDRC in Iowa

The University of Iowa Stead Family Children's Hospital Center for Disabilities and Development (CDD) and the Iowa Neuroscience Institute (INI) are joining forces with other researchers, clinicians, physicians, and scientists across the UI enterprise to form a new center aimed at advancing care for Iowans with IDDs. The center will be funded over 5 years by a $6.2 million dollar grant from the National Institutes of Health. The new center, dubbed Hawkeye Intellectual and Developmental Disabilities Research Center, or Hawk-IDDRC, will partner with CDD to integrate clinical care, teaching, and community outreach using a unique model found at only a handful of other health care institutions in the country.

 
 

9/1/2021

Nisonger Center & AUCD Professional Fellows Win U.S. State Department Award

The U.S. Department of State has awarded a $32,000 AEIF grant to AUCD Professional Fellows alumni and a Nisonger Center team led by Dr. Margo Izzo and Dr. Paula Rabidoux. The AEIF award (U.S. Department of State Alumni Engagement Innovation Fund) will sponsor the expansion of an online inclusive education & employment training partnership that connects Ohio LEND faculty, staff, and trainees to teachers in Tanzania's schools.

 
 

9/1/2021

Skills and Strategies for Health Care Decision-Making with Children Guide

The Skills and Strategies for Health Care Decision-Making guide was developed by URLEND trainees supported by the Rural Institute for Inclusive Communities at the University of Montana. The free guide may be printed or downloaded as a fillable PDF.

 
 

9/1/2021

Summer Enrichment Academy 2021: It's Time to Find the Superhero in You

When you think of summertime, you probably think of taking vacations, soaking up the sun, spending time with family and friends, and having time away from school. In Mississippi, 22 youth and young adult students with disabilities chose to make their summer a work learning experience instead. These students attended the ToTAL (Transition of Teens to Adult Life) 2021 Summer Enrichment Academy.

 
 

9/1/2021

The Ohio State University Nisonger Center Welcomes Psychiatrist Dr. Ashley Byrd

The Ohio State University Nisonger Center at Wexner Medical Center welcomes Ashley Byrd, MD, psychiatrist. Dr. Byrd is also an Assistant Professor of Clinical Psychiatry in The Ohio State University Department of Psychiatry and Behavioral Health.

 
 

9/1/2021

Trainee Voice: What I Learned in LEND by Victoria Murray

In May 2021, the Hawaii MCH LEND Program congratulated 22 long term trainees on their successful completion of the Program. At the final training session, trainee Victoria Murray (Discipline: Self-Advocacy) shared a beautiful poem with the cohort that captured what she learned in the Program. We wanted to share that poem with all of you.

 
 

9/1/2021

UNH Approved for $4.86 Million in Research Funding for Study of Telehealth Services on Mental Health Outcomes for People with IDD

Research associate professor Joan B. Beasley and a research team from the Center for START Services at the Institute on Disability (IOD) at UNH has been approved for a $4.86 million funding award by the Patient-Centered Outcomes Research Institute (PCORI) for their study: Evaluation of Telehealth Services on Mental Health Outcomes for People with Intellectual and Developmental Disabilities. The project will include partners from the University of Florida and Johns Hopkins Kennedy Krieger Institute

 
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